Open Letter from an Autoimmune Patient to Those Concerned About Her Vegan Diet.

Yours Truly on 07/17/2025. Hi.

Dear all who are concerned:

I have Sjögren’s Syndrome, a systemic autoimmune disease, and it’s with gratitude that I hear your doubts and qualms about the food that I eat. You’re worried about me. You’re worried that I’m possibly making myself sick, keeping myself sick, or making myself worse with my plant-based manner of fueling my body. I’m writing this letter in the hopes that it will ease your minds.

Instead of focusing on what’s wrong with me, focus on what’s right with me.

First, though, to review:

Between Sjögren’s Syndrome, itself, and the complications I’ve developed, I’m uncomfortable and in pain all of the time. I have a lung that’s structurally damaged and getting worse, and a stomach that’s 60% paralyzed. Sjögren’s arthritis and tendonitis leave my fingers, hands, and wrists painful and stiff; I currently can’t drive, hold a pen to write, or use my hands to push open a door.

First thing in the morning, because of my severe dry eye, I squint through one eye at a time as I feel around for the eye drops. Getting the drops into my eyes is difficult because it’s uncomfortable to keep my eyes open long enough to deposit the drops. (I often miss, re-squeeze the bottle, and end up with drops running down my face.) At the same time, my mouth, throat, and tongue are so dry, it’s an ordeal to swallow and to speak coherently. My finger joints are the worst when I wake up. I can’t close my hands into fists.

I push myself through my morning chore routine and declare victory when I can get the bed made before noon. Morning going-out plans require a self psych-out and a ride on a choppy wave of adrenaline. It helps if I’m excited about where I’m going. When I arrive, no one can tell that I battled to get there, and I relax onto the warm sands of another win.

A lot goes into the execution of an average day as I listen to my body and respect her limits. I know I’m going to be working out, and that I’ll need to show up for myself.

All of this said, I can’t feel too badly about my everyday trials and tribulations when I think of some of the things that I’m able to do, despite my chronic illness.

Examples:

–I can pull myself up in bed and swing my legs around using just my abdominal muscles. With my core strength, I can easily get up from a seated or lying down position without using my hands or other assistance. (Important because I can’t use my hands; they don’t flex backward, my wrists are weak, and the pain is a problem.)

–I can hold a 4+ minute plank on my knuckles. (Important for the same reason as parenthesized above.)

–I can walk five miles, up and down inclines at varying speeds, wearing a 12-lb weighted vest.

–I can work out nonstop for an hour doing LM Body Combat and Body Step classes, which incorporate HIIT cardio.

–I can run up and down stairs.

–I can lift weights. Using modifications where necessary to accommodate the disability in my wrists, I strength-train with weights at home, or on machines at Planet Fitness.

Amazing, isn’t it? Why focus on what’s wrong with me when I can yet do all of these things? Clearly, I’m doing something right.

I work out through the pain, and I get it done. These days, I work out six days a week. Regular exercise is highly encouraged by my doctors; it’s practically prescribed.

Imagine! I’m chronically ill with pain, discomfort, and a slew of medical challenges, yet I feel good in my body, and I’m fitter than many women my age (56) who aren’t sick. How can this be?

Food is medicine, and food is fuel. The food that I eat energizes my body even when I’m sleepy and tired. The energy in my body permits me to exercise consistently. What is this miracle food that allows me to maintain my fitness and a healthy weight in the face of my autoimmune encumbrances as a middle-aged woman in menopause with hypothyroidism and osteoporosis, to boot?

Plants.

I get my macronutrients (carbs, fats, and proteins, nutrients that we need in large quantities to ensure that our bodies function properly) and micronutrients (vitamins, minerals, trace minerals) from plants and plant-based foods. I’ve never been anemic or deficient in any vitamin or mineral.

Autoimmune disease is an inflammatory disease, and an anti-inflammatory diet is largely whole food, plant-based.

Rather than making me sick, plant-based eating makes it possible for me to enjoy a solid level of fitness despite my chronic illness, because I wouldn’t be able to do it if I didn’t feel this vitality in my veins. Rest assured that I am not making myself worse with my plant-based diet.

I’ve taken brief steps away from veganism over the years, for various reasons, so I know how much worse I feel when I do eat mammals, birds, fish, and dairy. It never went well. I experienced level 11 pain when Sjögren’s arthritis attacked both of my ankles in a bad flare. I couldn’t walk for two weeks. I was 25 years old.

Arthritis, rashes, bodily fatigue, and gastroparesis flares were just some of the additional issues I experienced. Every time, I returned to my plant-based diet, and I felt better. Even with my current problems, I feel better now than when I wasn’t vegan, because I have this awesome energy in my body. I always felt sluggish when I ate meat and animal products. For me, personally, there is no comparison.

It’s important to note that one autoimmune disease can lead to other AI diseases, and complications are always a lurking threat. Experts don’t know what causes autoimmunity in the first place; theories include genetics and environmental factors, but at this point, no one knows for sure.

What is known is that there are triggers that can interfere with the management of autoimmune conditions. For instance, stress can trigger flares, so minimizing stress as much as possible is always a goal. Foods that promote inflammation in the body should be avoided, while anti-inflammatory foods should be favored. Anti-inflammatory foods are plant foods such as fruit; veggies; whole grains; nuts; seeds; legumes (i.e. beans, lentils, and peanuts); and healthy fats found in certain plants and fish (i.e. olive and avocado oils, along with the omega-3 fatty acids found in flax seeds and fatty fish such as salmon, tuna, and sardines).

For research-based findings and information regarding the correlation between autoimmune diseases and whole food, plant-based diets (WFPB), I’m asking you to take the time to read this article published by the American College of Lifestyle Medicine: The Benefits of Plant-Based Nutrition: Treatment and Prevention of Autoimmune Disease. I’m providing the link here. The American College of Lifestyle Medicine is “A society of medical professionals united to reverse chronic disease,” and they provide a wellspring of information with research- and evidence-based educational pieces on this and various, related topics.

Though I do take pharmaceutical treatments for my disease, I consider my whole food, plant-based diet to be just as essential. I’m blessed to have the health that I have, but I also take some credit for my wellness. I’ll hang onto my vegan lifestyle, but thank you for your concern. I know that it comes from love.

I love you, too.

Let’s resist talking about each other just for one minute.

Overheard in line at the V.A. pharmacy the other day (for real, not metaphor):

Man’s voice: She looks too healthy and young to be here.

Woman’s voice (sounding snide): She’s probably just picking up for someone else.

I thought: They’re so close, and so loud. They can’t be talking about me…?

[::looks behind::]

[::sees no one but the two people making the remarks::]

And I realized that it really does suck to be talked about literally behind your back within close earshot, regardless of what the people are saying. I would have preferred that they address me directly, if they were so curious. I wouldn’t find that to be rude in the slightest.

When I turned to look at them, they were staring at me. I stared back. The woman’s eyes were cold. In fact, she was glaring. Like I didn’t have the right to be there.

Then the man said, to my face this time, that I looked too healthy to be picking up meds for myself at the V.A. pharmacy.

To which I replied, actually, yes, I’m picking up for myself. (I held up my veteran’s I.D. card, which I had in my hand. It’s required to pick up meds.)

Yes, I’m a card-carrying vet. You don’t believe me? Look. Holding up my I.D. as if I was a cop pulling someone over.

The man said, Whoa! You don’t say!!

A brief conversation about my combat service in the 1990-1991 Gulf War ensued before the pharmacist called my name.

NOTE: I was not offended. I was annoyed that I felt like I had to justify my presence there.

No one should feel that they have to validate their illness to strangers in line at the pharmacy.

No one should have to owe anyone an explanation to correct a record made because of an appearance-based judgment.

No one is safe from scrutiny.

It happens that “too healthy and young” are not hurtful words. I know that. But it was still a judgment based on appearance, and it was dismissive. It carried the insinuation that I was trespassing on sacred ground that belonged to others. Context is important. If you’re in line because you were ambushed during a ground war, it sucks to be dismissed because of how you look.

More often than not, though, people hear outright mean things when they overhear someone talking about them. People say hurtful things about others without caring. I’ve witnessed this kind of assholery; it’s awful.

The thing is, we’re constantly making judgments about others based on appearance. If that’s unavoidable because “it’s human nature”? At least don’t be an asshole.

 

lifecoach

 

When I had active Sjogren’s Syndrome, people actually did say to me, “But you don’t look sick!”

When someone found out that I have Hashimoto’s – autoimmune hypothyroidism – they actually said, “OH but you don’t LOOK like you have underactive thyroid disease.” (This has happened more than once.)

You’ve heard it all before. Invisible illness, blah, blah, blah.

Appearance: young/healthy = CAN’T BE A VET

Appearance: healthy = MUST BE HEALTHY

Appearance: heavier than average = MUST BE A LAZY OVER-EATER WITH NO SELF-CONTROL

Appearance: thinner than average = MUST HAVE AN EATING DISORDER OR A METH ADDICTION

Appearance: not white = MUST BE (insert stereotype associated with the applicable ethnicity)

Appearance: a cop = MUST BE A RACIST, BLOOD-THIRSTY PSYCHOPATH

Appearance: tattoos/piercings/other body modifications = MUST BE A DEGENERATE

Appearance: clean-cut = MUST BE AN UPSTANDING CITIZEN

Et cetera, ad nauseum. And we’re often wrong. We can get in trouble because of it. Remember Ted Bundy?

Most of us hear “Don’t judge a book by its cover” from the time we’re old enough to write a sentence. We know better, and yet we still do it! We are fallible human beings, all of us, by nature. In my opinion, since we’re born with the propensity to f*ck things up, we can at least try to be kind, decent, and respectful human beings.

(I’m sorry to come back to you with another ranty post. I prefer being positive here, but sometimes, there are things I need to say.)

Thank you for reading, as always!