Open Letter from an Autoimmune Patient to Those Concerned About Her Vegan Diet.

Yours Truly on 07/17/2025. Hi.

Dear all who are concerned:

I have Sjögren’s Syndrome, a systemic autoimmune disease, and it’s with gratitude that I hear your doubts and qualms about the food that I eat. You’re worried about me. You’re worried that I’m possibly making myself sick, keeping myself sick, or making myself worse with my plant-based manner of fueling my body. I’m writing this letter in the hopes that it will ease your minds.

Instead of focusing on what’s wrong with me, focus on what’s right with me.

First, though, to review:

Between Sjögren’s Syndrome, itself, and the complications I’ve developed, I’m uncomfortable and in pain all of the time. I have a lung that’s structurally damaged and getting worse, and a stomach that’s 60% paralyzed. Sjögren’s arthritis and tendonitis leave my fingers, hands, and wrists painful and stiff; I currently can’t drive, hold a pen to write, or use my hands to push open a door.

First thing in the morning, because of my severe dry eye, I squint through one eye at a time as I feel around for the eye drops. Getting the drops into my eyes is difficult because it’s uncomfortable to keep my eyes open long enough to deposit the drops. (I often miss, re-squeeze the bottle, and end up with drops running down my face.) At the same time, my mouth, throat, and tongue are so dry, it’s an ordeal to swallow and to speak coherently. My finger joints are the worst when I wake up. I can’t close my hands into fists.

I push myself through my morning chore routine and declare victory when I can get the bed made before noon. Morning going-out plans require a self psych-out and a ride on a choppy wave of adrenaline. It helps if I’m excited about where I’m going. When I arrive, no one can tell that I battled to get there, and I relax onto the warm sands of another win.

A lot goes into the execution of an average day as I listen to my body and respect her limits. I know I’m going to be working out, and that I’ll need to show up for myself.

All of this said, I can’t feel too badly about my everyday trials and tribulations when I think of some of the things that I’m able to do, despite my chronic illness.

Examples:

–I can pull myself up in bed and swing my legs around using just my abdominal muscles. With my core strength, I can easily get up from a seated or lying down position without using my hands or other assistance. (Important because I can’t use my hands; they don’t flex backward, my wrists are weak, and the pain is a problem.)

–I can hold a 4+ minute plank on my knuckles. (Important for the same reason as parenthesized above.)

–I can walk five miles, up and down inclines at varying speeds, wearing a 12-lb weighted vest.

–I can work out nonstop for an hour doing LM Body Combat and Body Step classes, which incorporate HIIT cardio.

–I can run up and down stairs.

–I can lift weights. Using modifications where necessary to accommodate the disability in my wrists, I strength-train with weights at home, or on machines at Planet Fitness.

Amazing, isn’t it? Why focus on what’s wrong with me when I can yet do all of these things? Clearly, I’m doing something right.

I work out through the pain, and I get it done. These days, I work out six days a week. Regular exercise is highly encouraged by my doctors; it’s practically prescribed.

Imagine! I’m chronically ill with pain, discomfort, and a slew of medical challenges, yet I feel good in my body, and I’m fitter than many women my age (56) who aren’t sick. How can this be?

Food is medicine, and food is fuel. The food that I eat energizes my body even when I’m sleepy and tired. The energy in my body permits me to exercise consistently. What is this miracle food that allows me to maintain my fitness and a healthy weight in the face of my autoimmune encumbrances as a middle-aged woman in menopause with hypothyroidism and osteoporosis, to boot?

Plants.

I get my macronutrients (carbs, fats, and proteins, nutrients that we need in large quantities to ensure that our bodies function properly) and micronutrients (vitamins, minerals, trace minerals) from plants and plant-based foods. I’ve never been anemic or deficient in any vitamin or mineral.

Autoimmune disease is an inflammatory disease, and an anti-inflammatory diet is largely whole food, plant-based.

Rather than making me sick, plant-based eating makes it possible for me to enjoy a solid level of fitness despite my chronic illness, because I wouldn’t be able to do it if I didn’t feel this vitality in my veins. Rest assured that I am not making myself worse with my plant-based diet.

I’ve taken brief steps away from veganism over the years, for various reasons, so I know how much worse I feel when I do eat mammals, birds, fish, and dairy. It never went well. I experienced level 11 pain when Sjögren’s arthritis attacked both of my ankles in a bad flare. I couldn’t walk for two weeks. I was 25 years old.

Arthritis, rashes, bodily fatigue, and gastroparesis flares were just some of the additional issues I experienced. Every time, I returned to my plant-based diet, and I felt better. Even with my current problems, I feel better now than when I wasn’t vegan, because I have this awesome energy in my body. I always felt sluggish when I ate meat and animal products. For me, personally, there is no comparison.

It’s important to note that one autoimmune disease can lead to other AI diseases, and complications are always a lurking threat. Experts don’t know what causes autoimmunity in the first place; theories include genetics and environmental factors, but at this point, no one knows for sure.

What is known is that there are triggers that can interfere with the management of autoimmune conditions. For instance, stress can trigger flares, so minimizing stress as much as possible is always a goal. Foods that promote inflammation in the body should be avoided, while anti-inflammatory foods should be favored. Anti-inflammatory foods are plant foods such as fruit; veggies; whole grains; nuts; seeds; legumes (i.e. beans, lentils, and peanuts); and healthy fats found in certain plants and fish (i.e. olive and avocado oils, along with the omega-3 fatty acids found in flax seeds and fatty fish such as salmon, tuna, and sardines).

For research-based findings and information regarding the correlation between autoimmune diseases and whole food, plant-based diets (WFPB), I’m asking you to take the time to read this article published by the American College of Lifestyle Medicine: The Benefits of Plant-Based Nutrition: Treatment and Prevention of Autoimmune Disease. I’m providing the link here. The American College of Lifestyle Medicine is “A society of medical professionals united to reverse chronic disease,” and they provide a wellspring of information with research- and evidence-based educational pieces on this and various, related topics.

Though I do take pharmaceutical treatments for my disease, I consider my whole food, plant-based diet to be just as essential. I’m blessed to have the health that I have, but I also take some credit for my wellness. I’ll hang onto my vegan lifestyle, but thank you for your concern. I know that it comes from love.

I love you, too.

Updates on Charlotte, my moldy lung.

Poor Charlotte. Charlotte the Lung is permanently partially collapsed. Charlotte is… moldy with a fungus.

But I’m getting ahead of myself.

First of all! Please do stay tuned for the tale of my haunted anniversary trip, as it is forthcoming. I have pics and everything! That was going to be today’s post, but since I went to see my pulmonologist earlier this week, I’ll go ahead and share those updates with you who’ve been following Charlotte the Lung’s ongoing (mis)adventures.

This time, I met with my own pulmonologist, Dr. M, so we could go over my bronchoscopy and Pulmonary Function Test results. (The surgeon who performed the bronchoscopy had shared his post-procedure findings and impressions, but I’m not his patient.)

This is what Dr. M told me, in order:

1). [::Walks into the room; sits down; looks at me::] “Your lung has a mold.”
It’s the fungus aspergillus. It grew in a Petri dish in the weeks following my bronchoscopy. This took me by surprise. Of all the things I thought I’d hear, “Your lung has a mold” wasn’t one of them. (Charlotte!!) Dr. M suspects that aspergillus was able to flourish in my lung because of the intermittent immunosuppressant therapy I do for Sjögren’s Syndrome. That would be Methotrexate, which I’m back on at the moment.

2). My lung will always be partially collapsed.
A larger area of collapse would require a stent, Dr. M explained, but mine is small. And it’s fine. I’ve been living with it, and I’ll continue to live with it. I mean, what else am I going to do? And really, it’s fine.

3). My Pulmonary Function Test revealed air-trapping,
which is when all of the air that’s inhaled in a breath can’t be exhaled. This a normal finding for someone with a collapsed lung. It’s common with conditions such as COPD and asthma, as well.

–The creepy web in my lung (covering the smallest airway in my Right Lower Lobe) wasn’t a birth defect, after all.
Turns out that the web was a by-product of inflammation caused by damage (collapse) and disease (aspergillus infection), basically a build up of cells. A strange, filmy sort of mass.

–The scarring in my lung
is likely the result of the aspiration event and aspiration pneumonia that started all of this, and it, too, is permanent.

Oh, Charlotte. From aspiration of a foreign object to severe aspiration pneumonia to COVID to my intermittent immunosuppressant therapy, we had, in the words of Dr. M, “a perfect storm.”

It could be so much worse. I’m grateful, thankful that this is all it is. I certainly appreciate having an in-depth understanding of why I wheeze and experience shortness of breath, have occasional difficulty taking a deep breath, why it’s harder to breathe when laying on my back, why I have a dry cough, and why I can’t get through an hour of HIIT cardio or hike at a certain altitude without using an inhaler.

I’ll have another CT scan and Pulmonary Function Test and appointment with Dr. M in six months, so we can see how things are going.

My treatment plan remains the same. I’m continuing on my two inhalers. I declined the 30-day course of anti-fungal antibiotics, opting to see whether the fungal infection will resolve itself, though Dr. M thinks that I’ve had it for a good while. I’m to let him know right away if my wheezing and shortness of breath get worse, or if I develop other symptoms.

It’s been a good week. I’ve been enjoying my reptile kid as he gears up for hibernation; job-hunting; working out; doing the usual household tasks; being a Cat Mom; playing games; watching hours of T.V. with my Favorite Person; and reading a lot. These are from today:

[10/3/2024]
Also today. Funny how it looks like I’m laying on one cushion. There are two.
Favorite Person is hilarious!!
I’m greatly enjoying the Andy Greenberg books I picked up, even though they get me riled up with fury and disbelief. Well, this one I’m currently reading, anyway. (Sandworm: A New Era of Cyberwar and the Hunt for the Kremlin’s Most Dangerous Hackers)

It’s the world we live in.

Okay, I can feel the Capricorn stirring. I’m tired. I’ll wish you all a good night and a great week ahead!

Several average days in the life of a jobless GenX-er. (FOOD and FITNESS-centric!! Lots of pics!)

Hello. I’m a fitness junkie, a combat veteran, and a jobless GenX-er with PTSD, autoimmunity, and a partially collapsed lung, and this post is for anyone who’s curious about what I may get up to in an average week. Let’s jump in!

Every morning, first thing: I put in lubricating eye drops so I can fully open my eyes, and I drink water so I can swallow. (Sjögren’s syndrome.) Also, take I take my thyroid medication. (Autoimmune thyroiditis/Hashimoto’s.)

The necessary lubricating eye drops and a thyroid pill first thing in the morning.

Then I make the bed. We’re looking at my side of it, with my plush octopus (that I call “Levi”).

Making the bed, not crawling back into it. (Alas.)

On this morning, I was able to bond with my desert tortoise, because he was out. It was Monday. We had our first monsoon rain of 2024 that day, and Geronimo spent more time in the yard than in his burrow! I went out to enjoy time with him in the morning, afternoon, and evening. By the end of the day, my heart was full with Geronimo love. It is so special. HE is so special. He is my heart; I love him so much. I can’t even explain it.

Lots of time with my precious little boy on this day.

Then I came in and prepared our coffee, as usual. I love this little ritual, love looking forward to coffee. My fav is black with a powdered blend of eight mushrooms, and also powdered monk fruit extract. Kyle likes his coffee the same way, but he takes plant milk in his.

Black coffee with mushrooms and monk fruit.

I prefer to finish my coffee before eating breakfast. Breakfast is usually some kind of cereal with frozen blueberries. I mix up a half-serving of vanilla plant protein shake to use instead of milk. It is delicious! If I don’t have cereal, I’ll have a piece of Ezekiel toast with Earth Balance and a full-serving chocolate plant protein shake.

(Mon-Sat, that is. I make chocolate-chip protein pancakes every Sunday morning.)

Cereal with frozen blueberries and a vanilla protein shake for the milk.

I almost always watch a video or two while I eat. I’m subscribed to quite a few YouTube channels, a handful of which are just regular people whose shenanigans I follow in their vlogs. The video I watched on this day was one of those.

Watched a video while eating breakfast.

Next, I pop the rest of my morning meds and do my Wixela inhaler.

Meds. Inhaler. Horror-themed water bottle. Check, check, & check.

Then I head into the bathroom to press a warm/hot compress onto my eyes, which is both a Sjögren’s management thing and the first step in my morning skincare routine. My Sjögren’s mainly attacks my eyes and mouth. Mostly my eyes.

The morning compress on my eyes feels incredible and makes a huge difference.

After that, I get ready for the day – brush my teeth, do my skin and hair, and put on something comfy.

For my first task of the morning on this day, I continued with my office closet re-org project. This is where I keep the clothes I don’t wear on a daily basis.

Moving things from one closet to another always generates a re-org project.

I gathered things for the Goodwill, did some laundry, and also spent some time searching for remote jobs.

Tuesday! On this day, I headed out to the dentist’s for a cleaning.

Going in to get my teeth cleaned is about a Tuesday thing to do as any other thing.

From there, I went to do some grocery shopping.

Grocery shopping at Fry’s

Also went to grab a few things from Target. Now, I’m not an impulse shopper, and I don’t enjoy shopping for clothes, but I walked past this dress on the clearance rack, and I had to try it on. Then, of course, I had to buy it. It was only $9.61!

Gorgeous dress on clearance!

It’s hard to understand what’s going on just by looking at pics. The inside layer is a short strappy bodycon slip dress, and the outer layer is a long floaty lace shift. The back is open. This dress is beautiful, and I can’t believe that I got it for less than ten bucks. Believe it or not, I didn’t own a single long solid black dress. Now I do. I have an occasion in mind for it, too.

This is the back. It’s open.

On my way home, I stopped in at a friend’s house to water their plants while they’re out of town. Later in the afternoon, I grabbed my usual protein bar for a pre-workout snack. I eat one of these bars six days a week, before every workout, and I never get tired of it. It’s basically a Thin Mint in bar form.

One of my fav protein bars.

So, yeah, I work out six days a week. This day was Tuesday, so it was strength-training with dumbbells, aka Body Pump on Les Mills On Demand. This was release #99, in case anyone’s interested in knowing that!

Hydrating.

I grabbed these screenshots from the video clip I recorded during the back track. Apologies for the horrible lighting, friends. Yikes. It’s bad.

Rows
Clean-and-press

Body Pump’s approach is an hour of light weights, high reps, and very little rest. These dumbbells are adjustable, and here I have them set at 15 lbs. It’s a good weight for the millions of reps that we do during the fast-paced 5-7 minute back workout.

Adjustable dumbbells

The next day was Wednesday, and I spent a little time in the kitchen.

Making a big batch of pico de gallo.
Fresh pico for days! I make it extra green (hot)

Then I made a high-protein “longevity” salad:

High-protein longevity salad with tahini-lemon dressing. I had half of a red cabbage, some green onions, and a couple of lemons to use up, so this salad was the perfect thing to make.

Wednesday is a Combat day. I have atelectasis (collapsed lung – mine is partial, as it’s only my lower right lung lobe); I have to do this Albuterol inhaler before I can start a Combat workout. Combat is basically 60 minutes of H.I.I.T., and I find it hard to catch a deep breath toward the end of the highly intense workout.

Because of atelectasis.

This is LMoD Combat #77, by the way. It’s one of my favorite Combat releases!

More apologies for the dark and grainy screenshots. The lighting was dim and totally unsuitable for filming. But you get the idea.

Just playing.
“The Wall”
NOT playing.
Leg check.

Later that night, I caught a mirror selfie almost by accident when I was talking to Kyle. I was standing at my little dresser getting ready to remove my make-up, and I had my phone in my hands. Glanced in the mirror while we were talking, and lo, I saw an opportunity. I will never understand how mirror selfies work, so when I saw this, I had to snap it.

Hilarious, but it seems to have worked.

The next morning was Thursday. Today. I had an onion and a scant cup of green lentils that I wanted to use up, so I made lentil soup for lunch.

I love an easy lentil soup recipe that calls mostly for pantry staples!
Lentil soup and spinach tortilla wraps stuffed with the high-protein longevity salad and tahini-lemon dressing that I made yesterday.

We also had the sugar-free vegan black bean brownies I made last week. They sound weird, but they are actually scrumptious, deeply chocolatey and rich. No one can believe that there’s two cans of black beans in this pan of brownies. It’s just a great recipe!

Black bean brownie. SORCERY.

Tonight: Dinner with my love while watching one of our current shows.

“The Boys” – if you know, you know.

I brewed up our nightly hot ginger tea. We started drinking this tea to assist with after-dinner digestion, and now, we’re oddly addicted to it. We drink it because we crave it!

Our favorite nighttime beverage: hot ginger tea.

When I sat down to put this post together, I realized that I never got pics of the girls this week! I immediately set out on a kitty-hunt. Here’s what I managed to get:

A Roary.
And a Sabrina.

And now, my friends, I’m heading to bed. Tomorrow is Friday, and I’ll be able to continue (and hopefully finish) some ongoing tasks around here.

I hope you all had a good week! Until next time!

Supplements Overhaul – because I’m over taking them in pill form.

Good evening, friends. Let’s talk supplements, shall we? For I have updates. I’ve shared my supplements regimens in the past, and I believe I said that I’d share my overhauled menu. I’m happy to deliver on that. Perhaps this may inspire or enlighten.

So!

In a manner unsurprising given a misadventure with a large supplement – ashwagandha, in this case – going down the trachea into the lung, one would consider alternative methods of supplement consumption. I settled on the idea of procuring supplements in the form of liquid extracts and sugar-free, vegan gummies, thus I now find myself with just such a collection. It covers everything I normally take: a multivitamin crafted for women; vitamin C; a collagen-builder; antioxidants; omega-3 fatty acids; and the aforementioned ashwagandha, which is neatly formulated in a complex of seven mushrooms.

About that: Prior to my aspiration event, I’d decided to cycle back into medicinal mushrooms, so the fashioning of a new mushroom menu didn’t occur without premeditation, nor did it necessitate inhaling a vitamin. This time around, my mushrooms of choice are lion’s mane; cordyceps; maitake; reishi; chaga; shiitake; and turkey tail… altogether coated in sugar, which, I know, I know! – I generally avoid. My supplement gummies are all sugar-free, except for the mushrooms. It’s okay. I’m really that skittish when it comes to taking supplements these days.

Here’s my new line-up:

Current daily supplement menu. I have these after lunch every day.

The liquid extracts go down in a single shot of zero-sugar Gatorade, and that is that. The gummies, too, seem to be just fine. None of them taste terrible. The mushroom gummies are straight-up candy. I can work with this.

(I can’t help but reflect that being home all day makes it easy to take these supplements. I don’t have to pack them up and worry that they’ll melt and then deal with the shot of Gatorade and so on and so forth. There are silver linings all over the place, it turns out.)

I hope this finds you doing well in this first week of August. Blessings and good health to you all!

Of lemons.

I’m ready for tomorrow. Coffee maker: prepped with ground coffee and water. Peanut butter sandwich: made and ready to throw into my bag before I leave the house for work. Now I’m reclining on the bed, leaning against pillows beneath a blanket, fresh out my nightly lavender aromatherapy shower. My hair is clean and damp, and that is one of my favorite feelings. There’s a glass of ice water at my side, and a large mug of hot water with the juice and pulp of half a lemon – one of my latest obsessions.

^ I wrote that paragraph last night and then got too sleepy to continue. Typical. I took this selfie first, though:

Post-shower, post-aromatherapy, post nightly skin care routine. [15 June 2023]

Picking up where I left off, I find it interesting how illness often seeds new obsessions and rituals. I now look forward to the nightly mug of hot lemon water. (Is there a name for that beverage? Lemon tea?) I started drinking it at night at the suggestion of a nurse at the beginning of the pneumonia – going on five weeks ago – yes, I still have it, though I’m on the mend. I’m waiting patiently for my lung to heal, and it’s been tricky, this waiting. I’m terrible at it, impatient with taking it easy, with the wheezing and gurgling in my lung when I breathe (gross). But instead of focusing on that, I lie in bed every night all cozy and clean and aromatherapied and counting my many blessings as I sip my hot lemon water.

And now it’s morning, and I’m sitting at the kitchen counter writing this as I sip from an enormous mug of coffee before I get ready for work.

Yes, I’m back at work.

No, I haven’t yet been cleared to work out. Two days ago at the hospital I posed the question again and was told in no uncertain terms that I’m not to do any lifting, not even light weights. No lifting at all. No elevating my heart into the aerobic zone. My body, said the doctor, is trying to heal my lung, and it can’t do that if it’s busy lifting things and experiencing any kind of heart-rate increase. Being inactive is going to help my body in this bizarre reverse universe.

BE THAT AS IT MAY, I’m grateful that I can otherwise go about my regular life. I go to work and then go straight home; I haven’t run any after-work errands since I’ve been sick. I’m grateful for the health that I have, incredibly grateful for Kyle, who’s been taking care of me and making sure that I don’t do too much.

Oh! Speaking of working out, I have been cleared to do stretches for my exercise. I’d been getting into that, anyway, as you may recall. That’ll have to be the main event rather than the supplemental event, and the more I think about it, the more eager I am to see where that takes me. Perhaps I’ll get back into yoga, proper. Perhaps it’ll shape the future of my fitness life in ways that wouldn’t happened otherwise. Illness, as I’d said, seeds new obessions. I don’t know about you, but interests easily become obsessions in my world.

Have the loveliest of days, friends.