Operation: Spoil Wrah-Wrah Wrotten

Ronnie James stayed in the hospital for three more days after I last updated here. We brought him home yesterday, after work.

It was a long weekend of worry and wait. We continued to visit the little guy twice a day, and we called the hospital every four hours to ask about the status of his pleural effusion. The volume of the fluid in his chest did decrease significantly from where it’d been earlier in the week, but hovering around the 8-10 ml range (down from 20-30!), it was still too much to warrant removing his chest tube.

So yesterday afternoon, Ronnie James underwent anesthesia again, and Dr. M. and the radiologist performed a lymphangiography. This procedure allowed Dr. M. to see whether we’d have a shot at the one last surgical option available for chylothorax: cisterna chyli ablation. The study results showed that the surgery would be irrelevant, since the problem was not leakage from the thoracic duct. The thoracic duct ligation surgery had been effective. The fluids were coming from somewhere else, likely from the pleura, as a result of pleural fibrosis. We are out of options.

The good thing about being out of options, though, is that the Wrah-Wrah is now home with us. He’s home, and we’re enjoying him, loving him and spoiling him with attention while we’re waiting for the next thing to happen.

Ronnie James is just the toughest little guy! His spirits are high. He’s happy and active, eating and drinking. But his little body is showing signs of wearing down. For one thing, despite eating well, he’s losing weight. We’ve stopped feeding him the prescribed low-fat diet. We’ve halted attempts to force him to take the loathed rutin. There’s no longer any point to these chylothorax medical management strategies. We’ve more or less entered a hospice phase here at home, and in this phase, we’re going to give him anything and everything he wants.

Dr. M. sent Ronnie James home with us last night so we could spend a good few days with him while he’s happy and alert. Freshly tapped, it will take maybe 48-72 hours for the increasing volume of fluid in his chest to slow him down again. I’m staying home with him today and tomorrow, because it’s out of the question that I’m not here to spend his last few days with him.

On Thursday, we’ll take him back to Dr. M. for an x-ray to see where we are with the fluids. We’ll probably have to make The Decision at that time… for real, this time.

Of course, I’ve got a slew of pics from the weekend.

From Friday:

 

Ronnie James got all the cuddles!

Ronnie James got all the cuddles!

 

Sleepy Wrah-Wrah.

Sleepy Wrah-Wrah.

 

"I can't even with this long underwear!" ~Ronnie James

“I can’t even with this long underwear!” ~Ronnie James

 

Ronnie James, our little dragon.

Ronnie James, our little dragon.

 

The Wrah-Wrah can chill with the best of them.

The Wrah-Wrah can chill with the best of them.

 

The Dude Abides.

The Dude Abides.

 

Here’s me on Saturday wearing my paw earrings just for the Wrah-Wrah:

 

Going to see my baby! Paw earrings required.

Going to see my baby! Paw earrings required.

 

On Sunday, many pictures were taken:

 

Mother's Day at the hospital!

Mother’s Day at the hospital!

 

"Happy Mother's Day, Mommy!" ~Ronnie James

“Happy Mother’s Day, Mommy!” ~Ronnie James

 

Ronnie James moved into a larger kennel on Saturday. More room for rolling around!

Ronnie James moved into a larger kennel on Saturday. More room for rolling around!

 

I got to hold him!

I got to hold him!

 

Daddy scritches are the best.

Daddy scritches are the best.

 

And on Sunday night, we got to spend an hour with him in a private room.

 

Wrah-Wrah cuddles in progress!

Wrah-Wrah cuddles in progress!

 

"I can spend forever in Daddy's arms." ~Ronnie James

“I can spend forever in Daddy’s arms.” ~Ronnie James

 

Snuggling with my baby on Mother's Day. Gratitude.

Snuggling with my baby on Mother’s Day. Gratitude.

 

A miracle could still happen, right? A miracle, an inexplicable turn-around, whatever you want to call it… it could still happen. But Ronnie James will tell us. He’ll tell us what he wants to do, and when he wants to do it. Our job is to listen. At the moment, I’m only hearing his happy “I see birdies!!” sounds as he watches the front yard through the living room window, and I’ve never heard anything more precious.

Today is March 6th, and this is significant.

Good morning! I have a few announcements.

One: Next week’s posts will come at you from a different time zone, as we’ll be visiting family and friends in France. I plan to post on Tuesday and Friday at around the usual time, so we’ll see how that works out. Also, I’m thinking there’ll probably be more images here than writing next week. I’m not anticipating having much time to write while we’re overseas, but I know a lot of pictures will be taken!

 

My hats from France, collecting dust on the back of a door, as black hats do.

My hats from France, collecting dust on the back of a door, as black hats do.

 

Two: Today is my brother’s birthday. Happy birthday, Bro! (Trivia: Callaghan and my brother are the same age almost exactly. They were born in the same year, 10 days apart.)

Three: Today is also the 17th anniversary of the opening day of The Big Lebowski in the United States.

LET US TAKE A MOMENT.

17 years ago today, the Coen brothers introduced Americans to The Dude. Can you believe it’s been that long? I can’t.

“The Dude abides.” That three-word quote is genius. The Dude’s paramount personality trait is being laid-back to the point of almost-apathy, but rather than being apathetic, he’s just free of constraints (especially self-imposed ones)! He does care, in his way. He teaches us how to live in moment, and how to prioritize. For example, getting thrown into a police car is secondary to the more immediate and pressing concern of the beverage in his hand that’s in danger of spilling in the process. It’s easy to see why some of The Dude’s admirers would take it upon themselves to create a religion (Dudism) after the sub-cultural icon who embodies “go with the flow” to the point where he simply abides.

I’m not cool enough to exist in a perpetual state of moment-by-moment abiding. In addition to roaches and Costco, my two legendary hang-ups, I can think of several things by which I cannot abide. In honor of the Dude, He Who Has Been Abiding for Seventeen Years Today, I will present you with those things.

I CANNOT abide by:

1). Dubbed movies.

2). Celery.

3). More than two consecutive days of overcast weather.

4). Doing the ginga to Thai music instead of to Afro-Brazilian capoeira music. (This is my only Les Mills annoyance. Would it be so hard to throw a birembau into that Body Combat music tracklist, Les Mills?)

5). The little “silica” packets you find in such things as new bags and outerwear pockets.

And on that note, I’ll wish you a Happy Friday!